Tag: Familial Hypercholesterolemia Global Impact

Artigos Cientificos sobre Hipercolesterolemia Familiar

Familial Hypercholesterolemia. WHO 1998. https://apps.who.int/iris/bitstream/handle/10665/66346/WHO_HGN_FH_CONS_99.2.pdf?sequence=1&isAllowed=y

Familial Hypercholesterolemia. Youngblom E, Pariani M, Knowles JW. GeneReviews® 2014, last Update Dec 2016, https://www.ncbi.nlm.nih.gov/books/NBK174884

A global call to Arms. Vallejo-Vaz AJ, et al,. Familial Hypercholesterolaemia: Atherosclerosis 09/2015; 243(1). DOI:10.1016/j.atherosclerosis.2015.09.021. https://www.atherosclerosis-journal.com/article/S0021-9150(15)30130-1/fulltext

O fenótipo da Hipercolesterolemia Familiar grave: casos clínicos. IM Gaspar. Factores Risco 2015; 38: 27-33.

Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS familial hypercholesterolaemia studies collaboration The EAS Familial Hypercholesterolaemia Studies Collaboration. Antonio J Vallejo-Vaz, et al,. Atherosclerosis 09/2016; DOI:10.1016/j.atherosclerosis.2016.09.068. https://www.ncbi.nlm.nih.gov/pubmed/27939304

Variable expression and penetrance in Portuguese families with Familial Hypercholesterolemia with mild phenotype. Gaspar IM, Gaspar A. Atheroscler Suppl. 2019 Mar; 36: 28-30. doi: 10.1016/ j.atherosclerosissup.2019.01.006. https://www.ncbi.nlm.nih.gov/pubmed/30876530

Activating the FH Global Community 2018

FH Foundation_2018FH Foundation_2018Familial Hypercholesterolemia Global Impact
In 1998, the World Health Organization and several members of the international FH Community published the WHO Report on FH. In the more than 20 years since its publication, only a few of these recommendations have been widely implemented on a country-by-country basis and an entire generation of impacted individuals with FH has been lost to premature heart disease.

During the 2018 FH Global Summit, the FH Foundation (FHF) initiated a Global Call to Action to update the original recommendations and create an advocacy tool to drive FH awareness around the world and to implement the updated recommendations. We partnered with World Heart Federation (WHF) to convene the international FH Community of impacted individuals, advocacy leaders, international associations, scientific experts, policymakers and the original authors of the 1998 report to collaborate together to reexamine the recommendations and update them to meet the needs of today’s FH population.

Two meetings were hosted by the FHF and WHF in Marina del Ray, California, US on Oct 3 and in Dubai, U.A.E on Dec 6. This created a coalition of 40 countries and 90 stakeholders who provided their perspectives of FH from low-middle-high-income regions. Together, with the leadership of Dr. Sam Gidding, Jasmine Patel, and Katherine Wilemon from the FHF, and Dr. Thomas Gaziano from the WHF, a set of eight global public policy recommendations covering awareness, advocacy, screening, diagnosis, treatment, research, registries, and cost/value were created.