FH Portugal participou em encontro de associações FH em Amesterdão

After FH patients organizations meeting, to share ideas on FH and high risk cardiovascular disease, there was a definite desire to continue this useful collaboration in the future, so further updates are likely to follow.

In the 7th of March, FH Portugal attended a cardiovascular roundtable meeting, at which a number of patient advocates representing other organizations with an interest in Familial Hypercholesterolemia (FH) and high risk cardiovascular disease came together to share ideas and insights, and identify potential areas of mutual interest and opportunities for future collaboration. The meeting, which was supported by Amgen (Europe) GmbH, was also attended by Familial Hypercholesterolemia Foundation(Spain), Alliance du Coeur (France), Patientföreningen FH (Sweden), Familial Hypercholesterolemia Foundation (USA) and Cardiovascular Centre Nymphenburg (Germany). Key themes discussed included the need for improvement in FH management and adequate acknowledgement of the disease, the use of registries and screening programmes for earlier identification and diagnosis, and the need for greater partnership between physicians & GPs, insurance companies, industry, professional organisations, governments and payers.